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Provides a summer camp for children with any neuromuscular disease covered by the organization's program. Summer camp provides a full range of recreational camping activities geared to the special needs of those with neuromuscular disease.
A voluntary health agency that works to combat over 43 neuromuscular diseases and is committed to finding treatments and cures while supporting a comprehensive program of direct patient services and clinical care.
Financial assistance for the repair of manual and power wheelchairs, leg braces, and communication devices. Operates an extensive equipment loan closet where clients can receive durable medical equipment at no charge. Items available include power wheelchairs, manual wheelchairs, bath equipment, canes, walkers, standing frames, etc.
COVID-19 Update: following all CDC and state guidelines.
Offers adult and pediatric support groups that provide a safe place to gather resources, interact meaningfully with others, and exchange valuable information with others in the neuromuscular disease community.